Professional Guinea Pig

A couple months ago I got an email about a psoriasis study.  I was so excited!  A potential treatment for my psoriasis AND I’d get paid each time I went to the dermatologist?  Let’s go!

I didn’t know if I’d get the placebo ointment or the drug, which was a vitamin D derivative.  Things were going well at first.  Then a few weeks ago my skin started to really itch.  I mean, viciously itch.  I couldn’t stop scratching.  And my skin turned all red. My dermatologist told me I’d been given the drug, so at least we knew why it was happening. Then things got really bad for my poor arms.  The skin got really tight.  And started to crack and bleed. I couldn’t sleep at night for the pain. I decided to drop out of the study.  I went to my next appointment prepared to drop out.  My doctor saw me and said “Take her out of the study right now”.  There were only 2 more weeks of the study to go, but there were also only 2 more weeks before I’m to leave on a cruise with my family.  Here’s what I looked like 2 weeks ago.  No filter. photo My doctor prescribed me a cream and told me to come back the Monday after Christmas. Here’s what my left arm looks like now. photo 2 Less red.  No more pain, thank goodness.  But I still look awful.  I’m not looking forward to putting on short sleeves in less than a week!

I asked my doctor about getting the shot (Humira, etc) but he said even though my arms are covered I don’t have enough psoriasis all over my body for my insurance to cover the shots and they run about $15k each.  YIKES.   When I get back from the cruise we’ll explore more options.  I’m just hoping for some more fading up until Monday morning when I board the ship in short sleeves!  I can’t go to the Caribbean in long sleeves!  I’ll just keep telling myself I don’t know those people and have myself a grand time!

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2 thoughts on “Professional Guinea Pig

  1. Karen Proulx says:

    Wow Humira shots are 15K. Shannon I work in a pharmacy here in Canada and I just filled a prescription for two Humira syringes today and they only cost $757 for two syringes. I hope they find something that gives you some relief.

  2. Marg says:

    I can’t believe how expensive that drug is, crazy! Your arm looks painful, I am sure it will fade and you have the right idea, rock out the short sleeves and don’t worry about it. Happy cruising!

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